Worlds of Care, Volume 51: The Emotional Lives of Fathers Caring for Children with Disabilities
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The stories of fathers caring for non-verbal children and how these experiences alter their understandings of care, masculinity, and living a full life.
Vulnerable narratives of fatherhood are, even now, rather few and far between; rarer still is an ethnographic study, backed by personal experience, that delves deep into the practical and emotional realities of intensive caregiving. Grounded in the intimate everyday lives of men caring for children with major physical and intellectual disabilities, Worlds of Care undertakes an exploration of how men consider and shape their identities in the context of caregiving. Author Aaron J. Jackson uses a combination of personal experience, deep ethnographic research, and creative nonfiction to offer an evocative account of what is required for men to create habitable worlds and find some kind of "normal" when their circumstances render them as anything but. Through stories taken from fieldwork in North America as well as the author's own reflections on caring for his severely disabled son, Jackson highlights the embodied dimensions of caregiving and makes an argument about the nature of our caring relationships and the potential that care has to transform us and change our understanding of who we are and how we relate to others.
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